NORD Launches Living Rare Study®
October 16, 2024
First multi-year study to assess the life impacts and growing public health challenge of rare diseases; data needed to improve policies and funding.
Media Center
Get the latest news and research updates from the Living Rare Study®. For media inquiries or to arrange an interview about the Study, please contact Cheryl Herbert, cherbert@rarediseases.org.
Announcements
Living Rare Research Reports and Highlights
NORD will share research findings periodically.