NORD Launches Living Rare Study
Oct 21, 2024
First multi-year study to assess the life impacts and growing public health challenge of rare diseases; data needed to improve policies and funding.
Media Center
Get the latest news and research updates from the Living Rare Study. For media inquiries or to arrange an interview about the Study, please contact Cheryl Herbert, cherbert@rarediseases.org.
Announcements
Living Rare Research Reports and Highlights
NORD will share research findings periodically.